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An Introduction to Real-World Data and Real World Evidence: A Virtual Traing Series for the Patient Community

December 4, 2020 @ 12:00 pm - 12:45 pm EST


Sources of RWD: An Introduction to Patient Registries

Moderator: Elisabeth Oehrlein, PhD, MS, Senior Director, Research & Programs, National Health Council

  • Robert McBurney, PhD, Chief Research Officer, Accelerated Cure Project for Multiple Sclerosis
  • Vanessa Boulanger, MSc, Director of Research Programs, National Organization for Rare Disorders

What: This webinar will introduce patient registries, one source of real-world data. Patient registries are diverse and there is no single, standardized definition. Registries are a collection of standardized information about a group of patients that may share a diagnosis or have another unifying characteristic. They are compiled to learn about that disease or condition, monitor outcomes and quality of care or for other research purposes. Patient registries may also be referred to as clinical registries, disease registries, and outcomes registries. Our speakers will provide an overview and case examples of patient registries to demonstrate how they are used to generate RWE.

Who: This webinar is intended for patients, patient group staff, and others interested in learning about RWD and RWE. Learn more about the larger training series here.


December 4, 2020
12:00 pm - 12:45 pm EST
Event Category:


National Health Council



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